And it's not even November 5th yet.
So far, the demand for a meeting, and subsequent pressure on key officials has produced -
- two assessments - one a year out of date, the other grossly insensitive, misleading and possibly libellous
- a substantial number of officials denying they are in the office whilst setting up decision meetings in secret
- considerable further damage to the little trust we had in either organization
- a number of officials taking unco-ordinated and often ill considered action which could be construed as duplicitous, but I hope is simply limited competence and poor information
- the beginnings of limited remedial action given grudgingly
All this reaction having taken place on the basis of paperwork only (well, less than 30 combined 'contact minutes' with our son himself)
Things have been stirred into action and the care review is at least live enough to get out of the way now. Getting it completed and making sure his care needs get catered for is still a series of battles further down the war. I honestly wish we didn't have to do things this way, but being reasonable, or even forceful, simply hasn't resulted in any action.
I'm afraid there will be some casualties in this - unfortunately these may well include some well intentioned 'footsoldiers' - and I'll be sorry about that. But I won't apologize for taking the action - this isn't about the tidiness of their paperwork - it's about my sons care. The front line Health & Social Services may well finish up with some bruised egos, they deserve better leadership and I'm in no mood to sacrifice the quality of my sons care just so they can have a quieter life. Their managers have rather thicker skins, bigger offices to hide in and surprisingly (even to me) far more ruthless personalities.
There are now a number of balls in their court, the next few weeks should be 'interesting'. (in the sense of the Chinese curse - 'may you live in interesting times'.)