I'm very conscious that I haven't been posting as much as I'd like recently - sorry, but there are reasons.
The trials and tribulations go on with our sons care - lack of progress on care package (being shouted about), failure of medical equipment (being addressed by us), concerns about sons continuing quality of life (doing something about this). But at the same time, the ordinary issues of family life that everyone else has, happen as well. We're currently helping our daughter with a major situation change (positive) and my wife has just had an operation (positive in the sense that the offending 'bit' has now been removed), so things are a bit busy just now. Everybody has these sort of commitments arising from time to time, but if you're a carer as well, it all gets a bit more complicated and tiring. Carers are ordinary people with normal lives - or at least trying to have normal lives. It's just that they have this extra caring layer on top. I suppose it's a like having two full time jobs - it makes the life/work balance thing generally trickier.
So if you see a carer looking stressed - don't assume it's a problem with the person they care for. It's just as likely to be the sort of thing that would stress you out - they're just operating that bit closer to the edge than you all the time.
Cosmological P.S. The world really is flat - I've looked over the edge quite a few times and it's an awful long way down.