Had a good couple of days with our son over the weekend. Took him out shopping in the morning, country walk in the afternoon and to a local 'family games' evening on Saturday. he stayed awake and alert right through. For him this is a real achievement. He had a good lie in Sunday i.e. didn't surface until late afternoon (including the most chilled out bath you could imagine). Oxygen sats high throughout. Apart from being on antibiotics for a bit of chest infection and the accompanying 'thrush' his health is really not bad just now (grabs frantically to 'touch wood').
Meanwhile, on the cuts front, his review seems to have gone into freefall now that we've asked to see a copy of the assessment being taken to panel. It should have gone today, then seemed to be delayed for 3 weeks and now looks in the medium to long grass. I can only assume they were worried that what they were proposing wouldn't stand up to scrutiny. I have to say that they were quite unhappy we wanted to see the assessment at all and were very reluctant to accept we had any rights - I think 20 years caring full time with no help, 8 years with some support and being his parents and main advocate give us some authority in this.
I also note that word is also coming out that on top of the front line service cuts being implemented, the back office savings are also emerging. If we delay long enough, I don't think there'll be anyone left in Social Services to do our assessment. I don't feel any happiness that many of the social workers and commissioners look like being out of work. We may not have liked some of what they had to do, but I do feel their hearts were in the right place - they were just never given the resources to do their job properly and had to spend most of their time fighting a rearguard action that endeared them to no-one. With service cuts and job cuts we're going to be on the same side of the barricades soon.